If you have lupus, you know that when people can’t see visible evidence of illness they may doubt your pain. So, it often comes down to the lupus sufferer to explain their experiences to friends and family — but how can this be accomplished?
Christine Miserandino was trying to explain to her friend what it was like to live with lupus when the spoon theory was born. Essentially, the theory is a way for chronic pain sufferers to show others what it is like to live with their condition.
The theory has made such an impact that there is now a following of people who refer to themselves as “Spoonies.” These are chronic illness warriors who connect with each other and share experiences online.
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