Lupus is an unpredictable illness that can be as much of an emotional rollercoaster for the caregiver as it is for the person with the diagnosis. The physical and emotional impacts of caring for someone with lupus can take their toll; it’s important to do all you can to avoid caregiver burnout.
On top of the tips listed below for avoiding burnout, remember that talking to someone about your experience as a caregiver can lift a huge weight off your shoulders. Whether you talk to a therapist, a fellow lupus caregiver, or someone from a support organization, make sure you express your feelings of loss, frustration, resentment, anger or guilt with someone — keeping them bottled up can be damaging to your mental health, and your ability to provide the best care you can.
Also remember to look for the positives. Perhaps caring for your loved one has strengthened the bond the two of you have, or helped you to see what’s really important in life. Every cloud has a silver lining.
Read our lupus caregivers infographic below to learn more about caregiving and avoiding burnout.
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