My Story: Patrice

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What were the steps leading up to your diagnosis?

My name is Patrice, and I was diagnosed with lupus in 1993.

I remember all of a sudden I felt like something was wrapped around my feet and my feet started cramping up whenever I was in a cold environment, and my fingers started hurting and turning colors. I went to the doctor and was told I had lupus, but other people said it was gout, but it was lupus.

At that time I had two children, and I was 34 years old at the time. I went to a Rheumatologist, and he didn't treat me as he should have. I remember him giving me 800 Motrin for pain, and that's it. I stopped seeing him and stopped caring.

Six years later I became pregnant in which I lost my baby because I had a blood disease, and it had gotten into her. I was then told again I had lupus and high blood pressure and I still was given Lupus medication.

I have experienced nose, ears and mouth ulcers, CHF lung disease, IBS, and in pain every day. However, I still manage to work with it, and it's not easy. There are days where I'm embarrassed that I can't jump right up, and out of bed. I usually have to limp up and down the stairs, I'm tired for no reason, I experience dizzy spells often, and I've lost so much weight.

I am depressed some days, and I don't want to bother people because they don't understand what its like to be in pain and take all these medications.

Well, that's my story, I'm not married or plan on getting married. I have two beautiful children, six grandchildren and one on the way.

Living with lupus is like a full-time job, but I manage to smile and keep moving – I'm 58 and fabulous!

What lifestyle changes have you needed to make?

Limited to going out and shopping trips.

Who has been there for you? How?

My mother and children.

Patrice-Story

Living with lupus is like a full-time job.

What accomplishment are you proud of?

What accomplishment are you proud of?

Living through this and watching my children and grandchildren grow.

Living through this and watching my children and grandchildren grow.

What's your advice to someone else living with Lupus?

Go to your appointments and take your medicine.

Is there anything else we should know?

I'm just happy to be able to type this and share. Thanks for listening.

Go to your appointments and take your medicine.

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