My parents have been truly amazing. I would not be alive without them. They brought me home from the hospital when some of my doctors told them there was no more that they could do and gave me around-the-clock IV's. They lost work and lost connection with the outside world. Our life consisted of doctors and treatment. Literally, that was all. They gave up everything to help me fight. They gave me back my life.
I think that my greatest accomplishment has been survival. Three times within the first year of diagnosis my parents were told to prepare for the worst. Seven and a half years later, I have completely outlived all expectations by far.
The accomplishment that I am most proud of, though, would be maintaining a positive attitude. I will be honest and say that it wasn't there all the time, but I found strength in music. I found inspiration in humor, most of which was created in my own mind from the combination of medications that I was on. It took a while for my parents and doctors to catch on to my humor, but once they did, it was contagious and then I had company in my world.
I had to learn to find humor in situations that were less than dignifying.
Seven and a half years later, I have completely outlived all expectations by far.
I was born and raised in a small town in central Maine. Family was always important to me and I frequently spent time with my parents, brother, both sets of grandparents, aunts, uncles and cousins. Through traveling frequently as a family, I discovered my love for adventure, learning about and seeing new things.
I began writing poetry my junior year in high school as an outlet of personal expression.
I graduated from the University of New England (1999) and the University of Southern Maine (2003) with an Associate Degree in Nursing and a Bachelor of Science Degree in Biology, respectively. After doing some of my own traveling throughout the country, I moved to central Florida in the fall of 2006. By the end of that year, I had made my way over to the Gulf Coast of Florida.
After being diagnosed with Systemic Lupus in 2007, I turned back to writing. I am currently working on my first fictional novella.
Lupus does not define who I am; it is only a part of who I am. Every day is a new beginning to do something you love and love what you do. Keep moving forward and together we can conquer the wolf.