I first started having leg cramps, and then I started losing a lot of weight. I had started dieting and going to the gym, so I thought it was because of that. Then I had an ulcer in my mouth, and I started falling asleep while sitting at red lights on my way to work! It wasn't until I had red spots on my legs that my primary doctor took me seriously, as that was a sign of kidney failure. I was admitted to the hospital in November 2007. I woke up and that's when I was diagnosed.
I ended up coming out of work – now I'm a stay at home mom! I have to limit my time in the sun and I really can't plan ahead too far anymore. If I do, I make sure I get as much rest as possible! I basically take life day by day.
My husband has been my biggest supporter. Even before he was my husband, and before I was diagnosed, he took care of the kids (2 and 4 years old at the time). I honestly don't know what they ate, what they did, or anything in that time frame – they are definitely alive and well because of him! Even today he’s fine with me being a stay at home mom taking care of the kids.
Take your meds, meet with your doctors and get some rest, you can't do it all anymore.
I make sure I get as much rest as possible! I basically take life day by day.
My youngest daughter is 20 months. When I was first diagnosed I was prescribed CellCept and you’re not supposed to get pregnant while taking those. I had to come off the meds because of a hip replacement, and five months later I ended up pregnant. I'm proud she’s a healthy little girl!
You’re going to have bad days, you’re going to get depressed; it's a symptom of being sick. Don't get discouraged. Lupus is much more manageable now and people with lupus are living longer, fuller lives! Take your meds, meet with your doctors and get some rest; you can't do it all anymore. And it's ok to say no!
I am married with three wonderful children, who I love being able to stay at home and raise.
I am 30 years old. I’ve been married for six wonderful years and have three beautiful children.