Lupus and Blood Clots: Managing the Risk

New Life OutlookNew Life Outlook New Life Outlook
edited December 2015 in Risks

Lupus article: Lupus and Blood Clots: Managing the RiskLupus and Blood Clots: Managing the Risk

Living with lupus SLE means living with an increased risk of blood clots. Clotting problems, oddly enough, occur more often with younger lupus patients.

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  • At age 22 I told my ob gyn that I should not take birth control because of Lupus. She insisted it would be fine. 2 months later I developed a small blood clot in my arm. At 28 I was pregnant with my 4th child and the placenta clotted and I lost my son at 20 weeks. At 29 and pregnant with my 5th child I was put on baby aspirin. My son wasn't growing so I went to Hopkins where they determined I was having placenta problems again. I was taken off the baby aspirin and laid in the labor room for 8 days before they delivered my 1 lb. 5 oz. son by c-section. My leg hurt when I was discharged, but I thought it was from being in bed so long. Couple weeks later I was diagnosed with a DVT. That was 25 years ago and I am still on Coumadin. I would recommend anyone with Lupus to stay away from any kind of hormones. It's not worth the risk. Fyi dx with Lupus at age 15 and am now 54.
  • AlyssaWinegardenAlyssaWinegarden New Life Outlook
    @CarolB Wow, what a powerful story - thank you so much for sharing your experience with us Carol!

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