More Stories

My Story: Jill Ocone

My Story: Jill Ocone

I began experiencing terrible headaches, fatigue, and muscle/joint pain about 13 years ago, but I didn’t take the symptoms seriously. As my symptoms became stronger, and with a family history of lupus, I knew it was time to see a doctor. I made my first appointment with my rheumatologist in the middle of 2006, who suspected lupus right from the get go. After that visit, however, I put my health issues on the backburner because my brother-in-law was diagnosed with esophageal cancer. I made Michael…

99 found this helpful by NewLifeOutlook Team on January 10, 2017
My Story: Anna Scanlon

My Story: Anna Scanlon

It was a really, really long process. There were lots of doctors thinking I was "just depressed." I was told several times I was healthy, or that I had chronic fatigue syndrome. Blood markers started showing up, though, when doctors actually started taking some of my symptoms more seriously. At first I was diagnosed with undifferentiated connective tissue disorder, then lupus SLE after a big flare. I have had to make a lot of changes, mostly that I need more sleep and that I mostly…

4 found this helpful by NewLifeOutlook Team on August 22, 2016
My Story: Vernice Sims

My Story: Vernice Sims

I was feeling tired all the time, and my hands started to hurt so bad I couldn’t sleep at night because of the pain. For the most part I have to stay active, moving around and exercising really helps a lot with my lupus. I also have to keep my diet in check. There are a lot of foods that I cannot eat without having a flare-up. My husband has been there for me from day one. When I get off track sometimes, he's the…

215 found this helpful by NewLifeOutlook Team on October 21, 2015
My Story: Mia

My Story: Mia

I was diagnosed with lupus shortly after a very difficult pregnancy with my second son. Having been pregnant five times in total (pre-SLE diagnosis), I finally had a doctor who listened and identified exactly what I had been dealing with all along without even knowing it. All the signs and symptoms along the way were never collectively considered by anyone, including myself. From extreme fatigue and sun sensitivity to dangerously low vitamin D levels and unexplained miscarriages, nothing ever added up. That is, until I…

251 found this helpful by NewLifeOutlook Team on September 23, 2015
My Story: DeAnn

My Story: DeAnn

I started having issues with swollen joints, losing weight, fatigue, nausea and fingers turning blue. My primary care physician ordered lab tests, and then referred me to a rheumatologist based on results and I was diagnosed with Undifferentiated Connective Tissue Disorder. Three years later, enough symptoms surfaced for a second diagnosis as Lupus SLE. Chronic fatigue, high blood pressure, nausea, chest pains, sun sensitivity, Raynaud, joint and muscle pain, and kidney issues are the main complications of my diagnosis.

455 found this helpful by NewLifeOutlook Team on August 12, 2015
My Story: David Postic

My Story: David Postic

My symptoms hit the weekend before my first week of law school. After going a few days with a stiff neck, stiff shoulders and stiff fingers, my doctor ordered lab work, which showed that my blood platelet count was 18,000/mcL. After further tests, we established it wasn't leukemia, hepatitis, rocky mountain spotted fever, or anything else we could think of. I saw general physicians, hematologists, infectious disease specialists, neurologists, and more. During this time, I was also on zero medication. Extra Strength Tylenol was the…

1.1k found this helpful by NewLifeOutlook Team on June 23, 2015
Tammy Rosales

My Story: Tammy Rosales

I had been to several doctors that diagnosed me with chronic fatigue syndrome, just worn down, depression etc. Not one of them tested me for lupus. My all time low, the straw that broke the camel’s back, was at my mom and dad's in Nashville, Arkansas. I literally got up, ate a little bit of breakfast and immediately went back to bed – I felt like I was drugged. This was very abnormal for me; I was normally up and going in the morning. This…

781 found this helpful by NewLifeOutlook Team on May 13, 2015
Ashley's Family

My Story: Ashley

I was working with first-grade teachers and students while also pursing my bachelor’s degree in human services to better myself and family. I started having lots of fatigue, hair loss, and red spots all over my fingers and toes. I was in and out of the hospital. It was doctor appointments back to back until one day I went to my appointment with a dermatologist. I will never forget it! He looked at me and said, 'Girl, you have lupus!' Next, he sent me over…

387 found this helpful by NewLifeOutlook Team on April 29, 2015
My Story: Diana

My Story: Diana

I had pain in my lower back for years before I was diagnosed. I complained about it to my GP, but she just brushed it off. She put it down to my working out, thinking it was just muscle pain. Sure enough, ultrasound scans showed two beautiful kidneys, so there was nothing to worry about, right? Wrong! Back in 2013, when I was revising for my law degree summer exams I noticed that my joints were stiff every morning. I have lived independently since the…

284 found this helpful by NewLifeOutlook Team on April 22, 2015
My Story: Connie Yang

My Story: Connie Yang

After recovering, I was able to find a new job and start new. About six months later I started experiencing completely different symptoms, which included shingles, headaches, extreme fatigue, nausea, joint pain, and major hair loss. I had lost about 45 pounds during this time and was put on temporary disability. Finally, after seeking several different medical opinions and going through a plethora of tests, I was finally diagnosed at the University of Utah Department of Rheumatology with systemic lupus erythematosus (SLE).

475 found this helpful by NewLifeOutlook Team on March 11, 2015
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